A keen runner struck down by Lyme Disease has organised a protest in London to raise awareness of the debilitating illness.

This week Government ministers ordered a major review of the diagnosis, treatment and transmission of the disease borne out of bites from infected ticks.

Public Health minister Jane Ellison made the announcement in the House of Commons following campaigning about the rising number of cases.

And Sarah Warren, from Lexden, Colchester, who has lived with Lyme Disease for 10 years, has organised a protest which will take place on May 24 at Parliament Square in London.

She said: “It has completely shattered my former life. I was a fit, healthy mum and runner, and was a primary school teacher. At my lowest point I was barely able to get out of bed and my parents had to care for me and my children.

“I was forced to pay for a private Lyme test, as the NHS ones are at best only 60 per cent accurate. Unfortunately the NHS do not accept overseas tests, despite the problems with their own tests, so I now have to pay for my own treatment.”

Mrs Warren, 48, can at best, control symptoms with long-term antibiotics.

She now runs her own business, tutoring from home.

Mrs Warren, who runs the Colchester Lyme Disease Support Group, will be representing 13 other Essex residents too unwell to attend.

She will be taking a poster with their names on and displaying it in Parliament Square.

Campaigners are also calling for Lyme Disease to be made a ‘Schedule 1 notifiable disease’ meaning the number of cases would be recorded more accurately.

A national petition recently signed by 10,473 UK residents means the Government will have to respond.

Lyme protests will also be taking place around the world during May in America, Scandinavia and elsewhere Europe.