ZOE Seager found out early on in her pregnancy that something was not right with baby Henry.

What she did not expect was for him to lose his fight at just four months old.

Miss Seager is still waiting to find out the condition which caused her second son to have seizures.

Although it has been a difficult time, she is staying positive and is now fundraising for the charity which transported her son to hospital.

Speaking for the first time about what happened, Miss Seager, 25, said: “I found out something wasn’t right at about 20 weeks, I had to have a lot more scans.

“They thought he was going to come early and so I was prepared for an early birth. I didn’t think anything was particularly wrong.

“I went into hospital at 36 weeks and was monitored, everyone was faffing around me because something wasn’t right.

“They said Henry was distressed so I had to have an emergency caesarian. It was the scariest time of my life.”

After Henry Till was born, weighing just 4lbs, he was taken straight to the special care unit at Colchester General Hospital.

Zoe was not able to see him until later that night, on September 26, 2016.

She said: “The following morning I was told he had been incubated and transferred to Luton as he was having seizures.

“We didn’t know why. He was in Luton for two days then came back to Colchester for a couple more days.

“They knew something was wrong with his brain.”

Due to his rare condition, he was transported back and forth to Addenbrooke’s Hospital by the Acute Neonatal Transport Service.

Unfortunately, he did not spend any time at home.

The 25-year-old said: “He spent 16 weeks in intensive care, his last four weeks around Christmas time were the strongest he had been and we had a really nice Christmas with him.

“We were learning how to take over his care at home.”

But while in hospital he caught bronchiolitis which affected his respiratory system.

He was sent back to Addenbrooke’s Hospital and despite the care there, he died on January 22, at just four-monthsold.

Mum Zoe added: “It felt like my world had ended but I have another little boy, George, who is four, and life had to carry on for him.

“It’s just the worst thing imaginable.” Now she aims to raise as much money as possible for the organisations which helped.

As well as a Fun Day which raised £2,928 for the Sick Children’s Trust, she is hosting a masquerade ball for the ANTS transport team.

Tickets are £55 per person and include an arrival drink, live music, magic and some fun money for the casino tables.

Places are limited and seats can be secured with a £25 per person deposit and the remainder paid by February 28.

For tickets and more information, search for the Charity Masquerade Ball event on Facebook.