PARENTS of a seven-month-old boy with a 12million-to-one condition which has left him blind need your help to raise £10,000.

Within days of Alfie Leggett’s birth, his mum and dad Tom and Kelly were concerned about his eyesight.

A month later he was diagnosed with Norrie Disease.

The rare genetic disorder, which only affects males, causes blindness and hearing problems.

It can also result in autism, slow development and seizures.

Tom, 35, will run a marathon at Colchester United’s Weston Homes Community Stadium on Saturday to kickstart the fundraising bid.

The money raised will go towards creating a sensory room for Alfie and any other costs he may incur.

Tom said: “I wanted to capture people’s imagination. I have been a Colchester United fan all my life. It is the first game of the season and we should get a good crowd there. Hopefully they will all cheer me on.”

He will run around the perimeter of the pitch before the match and during half time before running outside during the game.

Tom said: “I am very nervous about it. When I got through six miles on Sunday, I thought this is easy, but by ten miles I was struggling. I will give it my best, I have the biggest incentive – my biggest inspiration is my family.

“The money will go towards giving him a better future.

“We hope to do a sensory room for him, somewhere he can feel safe. Blind children need to know somewhere safe and secure.”

As Alfie grows he will be able to have hearing aids, medicine for seizures and a teacher has been assigned to him to help him through school.

Once he is a bit older, he can have a buddy dog and later a guide dog if he wants one.

Alfie’s three-year-old brother Harrison has also been keen to help out.

Tom said: “He has been a little star. He has been so helpful and loves his little brother to bits.”

The couple say they don’t know what the future will hold for Alfie, but have decided to focus on the here and now.

Kelly said: “He is a really happy little baby. He doesn’t cry, he is as good as gold.”

To donate, visit gofundme. com/alfiesvision.

We were told disease was a 1 in 12m chance

ALFIE was born at Colchester General Hospital on December 22.

Mum Kelly, 29, said: “It was a perfectly normal pregnancy and normal birth.

“He was born at 8.45pm and we were home by midnight. There were no problems everything was perfect.”

Two or three days later, his parents spotted a problem with Tom’s eyes.

Doctors at Colchester General Hospital thought Alfie may have cataracts and referred the family to Great Ormond Street.

After a series of tests, Alfie was diagnosed with Norrie Disease.

Tom said: “Every doctor we go and see has never heard of it. We were told it is one in 12million.

“When we go to doctors, we have to tell them what he has. But Great Ormond Street has been fantastic.”

Alfie was also diagnosed with glaucoma, which affects vision, and had to be given eye drops.

Kelly said: “We had done a bit of research into what Norrie Disease was. It is a genetic condition that only affects males.

“If Alfie had been a girl, it is possible he would have just been a carrier.

“We found out that most children lose their hearing from about ten to their early teens.”

At 12 weeks old, Alfie suffered another health scare.

Kelly said: “He had his 12 week jabs and they all went fine and that night he slept through.

“The next day he was a bit grizzly and he didn’t want to feed. He quickly went grey and after changing him, he was completely unresponsive. We took him to the walk-in centre and they were concerned how quickly he went downhill.”

Alfie was diagnosed with bacterial infection cellulitus and spent three days in hospital.

Tom said: “It was like he got reset. He didn’t know who anybody was. He would flinch when you picked him up.

“We went from raising a normal child with Harrison to something completely different.

“There are so many things you have to think about. When you pick him up, you can’t just bound over and pick him up – you have to tell him you are coming.”